There are a few Desmoid groups that I belong to on
Facebook and the ACOR.org board. I read their stories and share in their
frustration for the lack of answers that are out there. It’s not just the tumor(s) that destroy you
from the inside out, but it’s the unknowns that are the hardest to accept.
I could be pissed, angry and depressed. I could spend my days in bed and no one could
blame me. But what does that get
me? Stronger??? I think not! Happy??? Ummm, NO! Answers??? Hell to the NO!!! Healthy??? Not
likely! However, if I choose to stand
tall and fight this terrible unknown disease by creating awareness and raising
money, I not only get a warm fuzzy feeling inside, but with my efforts I get
the opportunity to educate one more person and raise one more dollar.
.
Don’t worry, I am not gonna stand on my soapbox today,
but rather I am going to praise one amazing and very dear friend (let’s call
this person Captain Birdseye because they’d like to remain anonymous) who has
touched me heart in a very special way by donating a dinner for 14 at
a fancy schmancy restaurant.
The lucky 14 will dine in a private room at the Hyde Park Prime Steakhouse in
Beachwood, Ohio. Their minimum donation
of $50 pp. will allow them to enjoy a 3 course meal (appetizers, meal, and dessert) and
their adult beverages and all proceeds raised will
be donated to the Desmoid Tumor Research Foundation (DTRF). Did you do the math? That is $700 dollars!!
I am so honored that the dear Captain Birdseye has come
into my life and befriended me and is helping me to spread awareness and raise
money so that we can find our answers.
Thank you Captain, I LOVE YOU!!!
xoxo,
Faith
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